Community leaders driven by passion and purpose to stop Alzheimer's.
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About Us
We are people living with Alzheimer's or other dementias, and care partners from across the country who are on the front lines of fighting this disease. We work tirelessly in our communities to create new approaches to finding a cure, supporting those living with Alzheimer's and their families, and demanding action to stop Alzheimer's.
Strategy
We advocate for cutting-edge solutions to improve Alzheimer’s care and accelerate research. We draw on our experiences as individuals from diverse backgrounds living with Alzheimer’s and other dementias, as care partners, and as family members to demand and implement innovative initiatives for care and a cure in our communities, nationwide and online.
We write, speak, advise, organize, and advocate to ensure that the voices of those living with dementia and care partners are central to key decisions made by policy makers, researchers, and industry. We tell our stories to bring this devastating disease out of the shadows and improve the lives of those living with Alzheimer’s and other dementias and their families. We are driven by the struggles of our own families and the millions of Americans touched by this disease, and by the optimism that it can and will be defeated.
Leaders
| Member | Background | Location |
|---|---|---|
| Jane Bandler | LCPC (retired) Caregiver 2008-2017 | Bethesda, MD |
| Carol Bradley Bursack | Author, columnist, and writer, “Minding Our Elders”, Moderator, UsA2 Facebook Caregiver Support Group | Fargo, ND |
| James Creasey | Founder and CEO, |
Denver, CO |
Michael Ellenbogen |
Living proudly with Dementia |
Jamison, PA |
Lynda Everman |
Founder, WomenAgainstAlzheimer’s |
Birmingham, AL |
| Terry Frangiosa | Principal Investigator, |
Harleysville, PA |
| Karen Garner | Author, "Missing Jim" |
Virginia Beach, VA |
Lisa Hirsch |
Author, My Mom My Hero |
New York, NY |
| Lori LaBey | 30-Year Care Partner |
Maplewood, MN |
| Marie Marley, PhD | Co-Author, Finding Joy in Alzheimer's: New Hope for Caregivers |
Kansas City, KS |
| Ann Napoletan | Co-Author, Founder, Marilyn's Legacy, Founder, UsA2 Facebook Support Group |
Columbus, OH |
| Daniel C. Potts, MD, FAAN | Founder, Cognitive Dynamics Foundation |
Tuscaloosa, AL |
| Ellen W. Potts, MBA | Founder, Dementia Dynamics, LLC |
Tuscaloosa, AL |
| Jessica Price-Parrott | Moderator, UsA2 Facebook Caregiver Support Group |
Lincoln, NE |
| Hailey Richman | Founder, KidCaregivers.com |
New York, NY |
| Susan Kiser Scarff | Author, Dementia: The Journey Ahead, A Practical Guide for In-Home Caregivers |
Phoenix, AZ |
| Kathy Siggins | Alzheimer’s Semipostal Advocate & Former Caregiver |
Mount Airy, MD |
| Allan S. Vann | Author, “Reflections of an Alzheimer’s Spouse” |
Commack, NY |
| Loretta Woodward Veney | Being My Mom's Mom & Refreshment for the Caregiver's Spirit |
Clinton, MD |
"A cure for Alzheimer’s: a fantasy, a wish, an impossible dream—the same words that were said to Galileo, Edison, Curie, Salk, and whoever dreamed up the internet. Yesterday’s dream is today’s reality."
Trish Vradenburg
Co-Founder, UsAgainstAlzheimer’s
UsA2’s series “Giving Voice to What Matters Most” features the stories of people who are living with dementia or at high risk for the disease. Tracey Lind, Daisy Duarte and Greg O’Brien met by Zoom to talk about issues that are important to them.
Giving Voice to What Matters Most
Caregiver Support
Resources
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Learn
National Alzheimer's Summit: Diversifying the Race for a Cure and Care
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Share Your Story
Bring Alzheimer's out of the shadows.
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Join the A-LIST
Make your opinions count for Alzheimer's research.