UsAgainstAlzheimer’s A-LIST®
An Online Community
- We are people invested in our Brain Health
- We are People Living With Alzheimer’s Disease, Family Caregivers & Healthy Individuals interested in maximizing our Cognitive Health
- We turn our experience into data, to inform government, policy, the medical and research industries, and greater society about What Matters Most to the Alzheimer’s Community
Here are some recent A-LIST highlights:
Sub-awardee of a three-year grant from the National Institute of Aging.
Partnered with Mayo Clinic to study lucid episodes among individuals with dementia. To learn more: "Developing and describing a typology of lucid episodes among people with Alzheimer's disease and related dementias"
Led cutting-edge research on caregiving during a pandemic. Published in Gerontology and Geriatric Medicine. Research available here: “Caring for Dementia Caregivers: Understanding Caregiver Stress During the COVID-19 Pandemic”
Ongoing partnerships with Biogen, ADPACE, Tufts University, and Brain Health Academy
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"There is strength in the number of caregivers willing to devote their daily lives to improving the lives of their loved ones suffering from Alzheimer’s. The A-LIST nurtures that strength by bringing us together to facilitate a path to a cure, and centering on the needs of both culturally diverse patients and caregivers." - A-LIST Caregiver
How the A-LIST Works:
Online surveys: Twice a month you will receive an email from A-LIST Founder Meryl Comer inviting you to answer a short survey.
Surveys ask about the issues we care about: Past survey topics include challenges for caregivers; dementia symptoms, such as agitation; managing the COVID-19 pandemic; and traveling with dementia.
We use anonymous survey results to make life better for our community: We make sure policy makers, researchers, health care providers, drug developers, insurers, and others who serve our community understand and consider our insights and preferences.
Get started! CLICK HERE to add your name, then check “I Agree” to sign our consent form that explains the A-LIST study. Then take our first online survey: the Pulse of the Community.
More from A-LISTERS
“We are all constantly learning because information is always coming out. I’ve relied on,and am very thankful the day I found A-List. They have been so helpful in directly dealing with diversity and this horrible disease and developing tools."-A-LIST Caregiver
The A-LIST Publications
Check out our Publications to see how the community's voice has furthered research!
Research Partners
UsA2 Voices of Alzheimer’s Program
Our vision is that rigorous data on what matters most to people living with dementia and care partners – the science of us – drives policy, research, drug development and access decisions affecting their lives. This program, which includes the A-LIST and AD PACE, develops patient and caregiver insights and experience data to inform advocacy, research, regulatory approvals, access determinations, care and services. This work will offer new knowledge to the field generally and advance drug development.
